Spastic Diplegia - Difficulty in Tracking CP Progression Through The Later Years

Difficulty in Tracking CP Progression Through The Later Years

Unusually, cerebral palsy, including spastic cerebral palsy, is notable for a glaring overall research deficiency — the fact that it is one of the very few major groups of conditions on the planet in human beings for which medical science has not yet (as of 2011) collected wide-ranging empirical data on the development and experiences of young adults, the middle aged and older adults. An especially puzzling aspect of this lies in the fact that cerebral palsy as defined by modern science was first 'discovered' and specifically addressed well over 100 years ago and that it would therefore be reasonable to expect by now that at least some empirical data on the adult populations with these conditions would have long since been collected, especially over the second half of the 20th century when existing treatment technologies rapidly improved and new ones came into being. The vast majority of empirical data on the various forms of cerebral palsy is concerned near-exclusively with children (birth to about 10 years of age) and sometimes pre-teens and early teens (11-13). Some doctors attempt to provide their own personal justifications for keeping their CP specialities purely paediatric, but there is no objectively apparent set of reasons backed by any scientific consensus as to why medical science has made a point of researching adult cases of multiple sclerosis, muscular dystrophy and the various forms of cancer in young and older adults, but has failed to do so with CP. There are a few orthopaedic surgeons and neurosurgeons who claim to be gathering pace with various studies as of the past few years, but these claims do not yet seem to have been matched by real-world actualisation in terms of easily-accessible and objectively-verifiable resources available to the general public on the internet and in-person, where many, including medical-science researchers and doctors themselves, would more than likely agree such resources would ideally belong.

Read more about this topic:  Spastic Diplegia

Famous quotes containing the words difficulty in, difficulty, tracking, progression and/or years:

    A parent who from his own childhood experience is convinced of the value of fairy tales will have no difficulty in answering his child’s questions; but an adult who thinks these tales are only a bunch of lies had better not try telling them; he won’t be able to related them in a way which would enrich the child’s life.
    Bruno Bettelheim (20th century)

    ... the only way in which Mr. Brooke could be coerced into thinking of the right arguments at the right time was to be well plied with them till they took up all the room in his brain. But here there was the difficulty of finding room, so many things having been taken in beforehand. Mr. Brooke himself observed that his ideas stood rather in his way when he was speaking.
    George Eliot [Mary Ann (or Marian)

    Such is the art of writing as Dreiser understands it and practices it—an endless piling up of minutiae, an almost ferocious tracking down of ions, electrons and molecules, an unshakable determination to tell it all. One is amazed by the mole-like diligence of the man, and no less by his exasperating disregard for the ease of his readers.
    —H.L. (Henry Lewis)

    Measured by any standard known to science—by horse-power, calories, volts, mass in any shape,—the tension and vibration and volume and so-called progression of society were full a thousand times greater in 1900 than in 1800;Mthe force had doubled ten times over, and the speed, when measured by electrical standards as in telegraphy, approached infinity, and had annihilated both space and time. No law of material movement applied to it.
    Henry Brooks Adams (1838–1918)

    The years between fifty and seventy are the hardest. You are always being asked to do things, and yet you are not decrepit enough to turn them down.
    —T.S. (Thomas Stearns)