Support
The National Organization for Rare Disorders was established in 1983 by individuals and families with rare diseases.
Genetic Alliance, established in 1986, lists information and support groups for approximately 1200 rare diseases.
The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization is led by Team R.A.R.E. (R.A.R.E stands for Rare disease, Advocacy, Research and Education). Global Genes promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations. Global Genes uses a simple concept of "genes and jeans" to broadly promote the needs of the rare and genetic disease community. The organization has launched a number of innovative rare and genetic disease awareness campaigns including, Hope, It's In Our Genes™, Wear That You Care™, 7,000 Bracelets for Hope™ to represent the 7,000 different rare diseases and Unite 1 Million For RARE™ disease.
The Canadian Organization for Rare Disorders (CORD) is the national network of organizations who represent people affected by rare disorders within Canada. CORD's intention is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.
Patients with Rare Diseases in Greece are represented by the Greek Alliance of Rare Diseases.
Read more about this topic: Rare Disease
Famous quotes containing the word support:
“Well of all things in the world, I don’t suppose anything can be so dreadful as a public wedding—my stars!—I should never be able to support it!”
—Frances Burney (1752–1840)
“Every winter the liquid and trembling surface of the pond, which was so sensitive to every breath, and reflected every light and shadow, becomes solid to the depth of a foot or a foot and a half, so that it will support the heaviest teams, and perchance the snow covers it to an equal depth, and it is not to be distinguished from any level field. Like the marmots in the surrounding hills, it closes its eyelids and becomes dormant for three months or more.”
—Henry David Thoreau (1817–1862)
“Can you support the expense of a husband, hussy, in gaming, drinking and whoring? Have you money enough to carry on the daily quarrels of man and wife about who shall squander most?”
—John Gay (1685–1732)