Relationship To Orphan Diseases
Because of definitions that include reference to treatment availability, a lack of resources, and severity of the disease, some people prefer the term orphan disease and use it as a synonym for rare disease. The orphan drug movement began in the United States.
Others distinguish between the two terms. For example, the European Organization for Rare Diseases (EURORDIS) lumps both rare diseases and neglected diseases into a larger category of orphan diseases.
The United States' Orphan Drug Act includes both rare diseases and any non-rare diseases "for which there is no reasonable expectation that the cost of developing and making available in the United States a drug for such disease or condition will recovered from sales in the United States of such drug" as orphan diseases.
Read more about this topic: Rare Disease
Famous quotes containing the words relationship, orphan and/or diseases:
“Most childhood problems don’t result from “bad” parenting, but are the inevitable result of the growing that parents and children do together. The point isn’t to head off these problems or find ways around them, but rather to work through them together and in doing so to develop a relationship of mutual trust to rely on when the next problem comes along.”
—Fred Rogers (20th century)
“The obvious parallels between Star Wars and The Wizard of Oz have frequently been noted: in both there is the orphan hero who is raised on a farm by an aunt and uncle and yearns to escape to adventure. Obi-wan Kenobi resembles the Wizard; the loyal, plucky little robot R2D2 is Toto; C3PO is the Tin Man; and Chewbacca is the Cowardly Lion. Darth Vader replaces the Wicked Witch: this is a patriarchy rather than a matriarchy.”
—Andrew Gordon, U.S. educator, critic. “The Inescapable Family in American Science Fiction and Fantasy Films,” Journal of Popular Film and Television (Summer 1992)
“A fiction about soft or easy deaths ... is part of the mythology of most diseases that are not considered shameful or demeaning.”
—Susan Sontag (b. 1933)