Notable Cases
- Nusrit "Nelly" Shaheen (born 1984) is the oldest known survivor with the condition. She lives in the UK and is one of nine children, four of whom also suffered from the condition and died as young children. Nelly lives an active lifestyle and is studying sports coaching and leadership at Hereward College.
- Hunter Steinitz (born 1994) is one of only twelve Americans suffering from the disease and is profiled on the National Geographic "Extraordinary Humans: Skin" special.
- Ryan Gonzalez (born 1986) is the oldest person in the United States living with the disease. He was featured in an episode of Medical Incredible.
Read more about this topic: Harlequin-type Ichthyosis
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