Bob Saget - Charity Work

Charity Work

Saget is currently a board member of the Scleroderma Research Foundation. His scleroderma efforts have further benefited such celebrities as Scary Movie star Regina Hall.

In an interview with Ability Magazine, Saget discussed how his sister was diagnosed with scleroderma at 43, and died at 47. Before that, she had been misdiagnosed many times. "Unfortunately, rheumatologists in a lot of places don’t have very many scleroderma patients come through their labs, and no one knew what to do with her. I wish I’d known then what I know now."

Because of this, Saget is involved in many fundraising benefits, towards finding a cure for this disease.

"Nobody knew about the disease at that time. Rosie O'Donnell, Ellen DeGeneres, and myself all got involved in the benefit, but this was 25 years ago, and none of us had any real television life to speak of. Sharon Monsky, who founded the Scleroderma Research Foundation, organized that benefit."

"There’s also a Scleroderma Foundation, and we’re separate from them, but one of the Scleroderma Foundation board heads is also on the Scleroderma Research Foundation board. We’re all basically trying to cure the same thing. Our organization has raised $25 million for research. Our chairman, Luke Evnin, is an amazing man, and lives up in San Francisco with his wife, Deann Wright. They’re both brilliant scientists and doctors. Dana Delany’s on the board, Caryn Zucker, Kristen Baker Bellamy, who lost her mother to scleroderma, and is married to Bill Bellamy. Robin Williams worked our first benefit. A number of celebrities sign on, which helps to give the disease a higher profile. As you may know, Regina, a significant number of the people who get scleroderma are African-American."